Peran Kegiatan “Family Gathering” dalam Membangun Emosi Sosial Penyandang Thalassemia di Banyumas
DOI:
https://doi.org/10.58192/karunia.v2i3.1108Keywords:
thalassemia, Yayasan Thalassemia Indonesia, family gathering, emosiAbstract
Thalassemia is a genetic disease that is still a problem in Indonesia. Patients often face emotional problems and difficulties in social relationships. This condition can affect the management and treatment of thalassemia. Family gatherings play an important role in strengthening the support system for thalassemia patients and their families. The collective strength and determination gained from this family gathering helps thalassemia patients and their families face the challenges of this condition head-on, bringing a sense of hope and optimism for the future. Family gathering activities were carried out which were attended by more than 200 patients and their families. Overall, family gatherings focused on strengthening thalassemia families and patients provide an important platform for support, education, and empowerment. Family gatherings increase emotional support, belonging, remove stigma, and motivate to always be better.
References
Amin, Z. and Heny, N. (2023) ‘he Effect of Family Gathering on Increasing the Psychological Welfare of the Elderly in the Nursing Homes.’ Jurnal Keperawatan Malang, 8(1) pp. 244–254.
Angastiniotis, M., Petrou, M., Loukopoulos, D., Modell, B., Farmakis, D., Englezos, P. and Eleftheriou, A. (2021) ‘The Prevention of Thalassemia Revisited: A Historical and Ethical Perspective by the Thalassemia International Federation.’ Hemoglobin. Taylor & Francis, 45(1) pp. 5–12.
Artamia, I. P., Rakhmawati, W. and Shalahuddin, I. (2019) ‘Gambaran dukungan keluarga terhadap pengobatan remaja penyandang Thalasemia.’ Holistik Jurnal Kesehatan, 13(3) pp. 255–262.
Al Habsyie, N. (2022) ‘Resiliensi, Dukungan Sosial Dan Religiusitas Seorang Ibu Dengan Tiga Anak Penderita Thalasemia.’ Jurnal Psikologi Islam, 9(1 SE-Non Empirical Research).
Hastuti, R. P., Mariani, R., Ujiani3, S., Sumardilah, D. S. and Elizar, E. (2023) ‘Peningkatan Kualitas Hidup Anak Thalasemia Pada Masa Pandemi Covid-19.’ Berdikari: Jurnal Inovasi dan Penerapan Ipteks; Vol 11, No 1 (2023): February.
Kumar, N., Turbitt, E., Biesecker, B. B., Miller, I. M., Cham, B., Smith, K. C. and Rimal, R. N. (2019) ‘Managing the need to tell: Triggers and strategic disclosure of thalassemia major in Singapore.’ American Journal of Medical Genetics Part A. John Wiley & Sons, Ltd, 179(5) pp. 762–769.
Lusiani, L., Mediani, H. S. and Nurhidayah, I. (2017) ‘Analisis Faktor Yang Berhubungan Dengan Kualitas Hidup Anak Penyandang Talasemia Mayor.’ Jurnal Kesehatan STIKes IMC Bintaro, 1(3 SE-Articles) pp. 6–19.
Nurvinanda, R., Mulatsih, S., Hartini, S. and Nurjannah, I. (2019) ‘Dukungan Keluarga Dalam Merawat Anak Dengan Thalassemia Beta Mayor.’ Citra Delima : Jurnal Ilmiah STIKES Citra Delima Bangka Belitung, 2(2) pp. 95–100.
Nurvitasari, J., Mardhiyah, A. and Nurhidayah, I. (2019) ‘Masalah Psikososial Pada Penyandang Talasemia Usia Sekolah Di Poliklinik Talasemia Rsud Sumedang.’ Jurnal Keperawatan Komprehensif (Comprehensive Nursing Journal), 5(1 SE-Articles) pp. 55–63.
Riar, F. J., Wiedeler, C., Kammerlander, N. and Kellermanns, F. W. (2021) ‘Venturing Motives and Venturing Types in Entrepreneurial Families: A Corporate Entrepreneurship Perspective.’ Entrepreneurship Theory and Practice. SAGE Publications Inc, 46(1) pp. 44–81.
Riskawaty, H. M., Wasliah, I. and Ramadani, N. I. (2023) ‘Hubungan tingkat Pengetahuan Keluarga Terhadap Perawatan Di Rumah Pada Penderita Thalasemia RSUD Provinsi NTB.’ Innovative: Journal Of Social Science Research, 3(2 SE-Articles) pp. 9644–9655.
Rujito, L. and Mulyanto, J. (2019) ‘Adopting Mass Thalassemia Prevention Program in Indonesia: a Proposal.’ Jurnal Kedokteran dan Kesehatan Indonesia, 10(1) pp. 1–4.
Sarinengsih, Y., Fransiska, D., Fuadah, N. T. and Rustikayanti, R. N. (2023) ‘Psychological Well-Being terhadap Kualitas Hidup Remaja Thalasemia Mayor.’ Jurnal Keperawatan, 15(1 SE-) pp. 451–456.
Sartika, N. and Allenidekania, A. (2020) ‘Masalah Psikososial Remaja dengan Thalasemia Mayor: Literature Review.’ Dunia Keperawatan: Jurnal Keperawatan dan Kesehatan, 8(2) p. 140.
Suci, R. A., Agnita, U. and Riau, R. (2022) ‘Hubungan Dukungan Keluarga Terhadap Kualitas Hidup Anak Dengan Talasemia.’ Jurnal Keperawatan Abdurrab, 6(1) pp. 18–32.
